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Friday, February 17, 2012

Advocacy for Patients with Chronic Illness: Raise Your Hand for Rare Disease Day

Check out this link from a blog I follow (Advocacy for Patients with Chronic Illness). If you go to this site to "raise your hand" $1 will be donated.

Advocacy for Patients with Chronic Illness: Raise Your Hand for Rare Disease Day

2 comments:

Mary at LaL Solace said...

Thank you for sharing your story in honor of Rare Disease Day. My son Gage passed away from a rare genetic disease called early-onset LAL deficiency (also known as Wolman disease) in 2009. As you know personally, it is so important to be an advocate and speak up for our loved ones. My hope is that someday other families will not have to go through what we did, which is why I founded LALSolace -- a support group for people and families affected by LAL deficiency. I wish your family well! Mary http://www.lalsolace.org

Tara said...

Mary, my heart goes out to you. I am so sorry for your loss. Thank you so much for taking the time to read my blog.