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Friday, November 2, 2012

One month post op

I cannot believe it has been a month since my surgery!  I must say that it has been life changing in many ways.  My husband and I brought our youngest daughter on a field trip to a pumpkin patch last week and we had SO much fun!  I probably irritated them by constantly making the remark that my head did not hurt!  It was just so surreal to me.  I have not done anything fun like that without the constant stabbing pain every second and it is a completely different feeling.  We also went trick or treating with some dear friends of ours on Halloween and we had a blast!  I am so excited about going places and doing things I did not feel like doing for years.  I am still being careful though because I do not want to do anything to cause my leads to move.  I did have a little incident where my daughter went a little nutty and it was just me and her so I had to pick her up to make her get in the car.  I am hoping that everything is ok.  Now on certain settings with the stim I have started getting uncomfortable stimulation in my nose.  Yep, it feels really weird like when your hand falls asleep.  I hope that the lead in my cheek did not move around and change position.  My followup with my surgeon is in a couple of weeks so I will ask him then.  I think I am going to ask my St. Jude rep to make me a couple of more programs too.  I am back working part time also and love being back to work.  It is so different now sitting and working without saying "My head is killing me!"


Melanie said...

Tara, I just found your blog today and would love to chat with you about your experiences. I have been diagnosed with occipital neuralgia/Chronic Daily Migraines. I am from Alabama as well. I went to UAB yesterday to be told there is nothing else they can do for me except send to a pain management clinic. I am extremely interested in the ONS. Is there a way I can contact you to ask you some questions about how you found a doctor who would do it and what all you had to go through to have it done? You can also contact me at I look forward to hearing from you!

Tara said...

Melanie, I am so very sorry I just now read your comment. I have neglected my blog for quite a few months. I am emailing you but just in case you are following the blog, feel free to contact me anytime. Again, I am really sorry I am just now reading your message.