I am a patient (not a medical professional!) who has been dealing with hemicrania continua since 2009. This causes constant head and facial pain on one side of the head 24/7. I am looking into occipital nerve stimulation as a treatment as I have tried everything else.
Saturday, June 4, 2016
Wrong diagnoses
Well it has been a little over a year since my last post. It turns out I have a lot more going on than what was thought at first. Apparently I have lupus which has been the cause of all my problems like the unexplained joint pain and fever and overall feeling as if I have the flu every couple of months or so. Apparently the lupus has affected the peripheral nerves in my head and face. I fear that it has been so many years before a proper diagnosis that it is too late and irreparable damage is done. I experimented more with the kratom and found the right dose. It was a huge help. Unfortunately it has now been banned in Alabama so that option is taken away. I hate taking pain medications. I swore I would never get back on the long acting morphine again. It made me have terrible mood swings and rages. It was a roller coaster of lows and highs with the medicine kicking in and wearing off. I have no idea what I will do next.
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