On an exciting note at this appointment I am bringing this list and a referral sheet for a doctor I found in North Carolina that does the occipital nerve stimulator implant!!!! Hopefully my dr can get me referred and I can get in to see him soon.
The list:
Antibiotics given by Urgent Care doctor when headache first started for "sinus" problems, although no sinus symptoms present
Ice
Heat
Triptans
Excedrin
Advil/Motrin
Aleve
Tylenol
Aspirin
Migranal
Topamax
Steroid Dosepak
Botox injections
Imitrex injection
Chiropractic care
Indomethacin - the only relief but caused GI ulcers, at first diagnosed with Crohn's disease by Gastroenterologist thought to have been triggered by the medication
TMJ dysfunction treatments: bite split and bite splint adjustments, muscle relaxers, Valium
Radiofrequency thermoneurolysis for temporal tendinitis
Elavil (amitriptyline)
Panlor DC
Lortab and Lorcet
Esgic Plus
Ergonovine - caused severe chest pain, constriction/coronary artery spasm per Cardiologist
Zonegran
Trileptal
Nubain
Occipital nerve blocks
Gone to Eye Doctor yearly to make sure eye strain not a factor
HeadOn OTC topical treatment
GelStat migraine OTC sublingual
MigreLief (magnesium, riboflavin, feverfew)
MigraDefense (riboflavin, magnesium, feverfew, guarana, butterbur, white willow, griffonia, actisorb [black pepper extract, ginger root extract, rosemary leaf extract, turmeric extract and cayenne extract]
January 25, 2012 edit:
Now I have also tried these medications:
Carbamazepine (Tegretol) - did nothing
Nucynta - did nothing at several different strengths
Celebrex - did nothing
Methadone (severe nausea and vomiting and inability to stay awake) but did nothing for the pain
Diamox (side effects of tingling hands and feet, nausea and vomiting, severe drowsiness) two week trial ending today- no effect whatsoever on my pain
Kadian (my present pain management) at least takes the edge off pain so I can get out of bed
I also had a cervical epidural which actually helped symptoms in right hand and arm that I thought were carpal tunnel, but no effect on head pain at all except for reduced pain that lasted 3-4 hours
Now I have also tried these medications:
Carbamazepine (Tegretol) - did nothing
Nucynta - did nothing at several different strengths
Celebrex - did nothing
Methadone (severe nausea and vomiting and inability to stay awake) but did nothing for the pain
Diamox (side effects of tingling hands and feet, nausea and vomiting, severe drowsiness) two week trial ending today- no effect whatsoever on my pain
Kadian (my present pain management) at least takes the edge off pain so I can get out of bed
I also had a cervical epidural which actually helped symptoms in right hand and arm that I thought were carpal tunnel, but no effect on head pain at all except for reduced pain that lasted 3-4 hours
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