I am a patient (not a medical professional!) who has been dealing with hemicrania continua since 2009. This causes constant head and facial pain on one side of the head 24/7. I am looking into occipital nerve stimulation as a treatment as I have tried everything else.
Friday, January 6, 2012
Cervical epidural
The steroids kicked in this morning. I was feeling much better early this morning. Believe it or not, after that and after taking my medication (newly upped dosage starting yesterday), I had a few minutes with no pain! It was awesome!!! After about 3 hours I decided to go outside. It is very sunny today. My youngest daughter and I were walking the dog and the stabs just came on very intense. It has been back ever since. I am feeling sorry for myself now. :-( I wrote a desperate email to my neuro asking for help. I am so sick of this whole illness. It has been such a rollercoaster. When the pain is better even for a little while then comes crashing back, it is so devastating not only to me but also to my family. It is such a happy time when I feel like doing things, then all of a sudden I am going to bed with my ice pack because of the pain. I really don't feel that I have ever done anything so bad in my life to deserve such an illness as this hemicrania continua. Ok I will quit venting for now before I am totally wallowing in self pity here. Hopefully I will hear something back from the doc soon.
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2 comments:
Tara, I always tell medical people that I wouldn't wish this on my worst enemy.
Mine runs in a 3-4 day cycle with intermittant ice picks of pain...still goes on with the ONS, but less so. Once a month totally out of hand no matter what.
Maybe the light triggered it or the walk?? I never could find a 'trigger' for me other than exercise of any sort. Walking or running a vacuum - any type of physical activity makes mine worse. It seems to be a common characteristic of the disease.
The ice pick stabs I get in bunches are no fun either. I am told there is no help for me on that since I can't do indomethacin. Hoping your injection helps a great deal!!
Yes it was probably the light or the walk, or the combination. Both of those wreak havoc on my head. I was just so happy to feel better I stepped out to enjoy the day for a while hoping that would not happen. So even with the stim you still have the stabs??? Oh no I am really sorry to hear that.
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