I am a patient (not a medical professional!) who has been dealing with hemicrania continua since 2009. This causes constant head and facial pain on one side of the head 24/7. I am looking into occipital nerve stimulation as a treatment as I have tried everything else.
Tuesday, July 26, 2011
What the...
Ok, so now something totally different is happening. Now the right side of my head has been hurting this afternoon. Strangely enough the right side of my head hurt and my left cheek was red and hot. What is going on with my crazy body?? Tonight however I am back to the same ol' headache on the left and red hot cheek. I wonder if I need to ask to have leads placed on both sides if I actually get to have the stimulator placed? Now I am wondering a little bit about my diagnosis. I have read a couple of articles about a person having hemicrania continua with side shift, but it seems to be very rare. Up until now I have never had a doubt. All the symptoms matched. Who knows?
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2 comments:
My headaches are always on the left. I've had like 3 ever on the right. When I had my stimulator trial the only put wires on the left. But once those took the pain away, I realized that I actually had pain on the right as well, it just wasn't as bad so it was always overshadowed by the pain on the left. I never would have guessed that. So for the permanent implant they put wires on the right too and I am REALLY glad they did. It's something to think about for SURE.
Thanks so much for your input! Now I am sure I am going to ask them to do that.
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