tag:blogger.com,1999:blog-6853744645031857533.post5472862990715329187..comments2023-03-30T10:31:45.935-05:00Comments on A day in the life of HC: Still waitingAnonymoushttp://www.blogger.com/profile/04914907928383970059noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-6853744645031857533.post-47696155458304417882011-10-05T10:49:59.340-05:002011-10-05T10:49:59.340-05:00While it is nice to hear from someone else who suf...While it is nice to hear from someone else who suffers with my condition it also makes me sad that they are going through the same things I am too. I wish you luck on approval for the stim too. Keep me updated!Anonymoushttps://www.blogger.com/profile/04914907928383970059noreply@blogger.comtag:blogger.com,1999:blog-6853744645031857533.post-78597440159313065912011-10-04T12:52:46.146-05:002011-10-04T12:52:46.146-05:00I can imagine you are tremendously frustrated. I h...I can imagine you are tremendously frustrated. I hope that you can get help with pain management in the meantime and hear from the insurance company soon.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6853744645031857533.post-45219406092985113592011-10-04T10:29:50.450-05:002011-10-04T10:29:50.450-05:00The bit in your post about having to go on with yo...The bit in your post about having to go on with your life abnd pretend that all is normal felt as though I had written it myself. I have been suffering with HC for about 16 months now and feel as though I am barely holding it together. Mine is intractable to medicine, so I will need to try occipital nerve stimulator implant surgery. As I am in Britain, I have to go through the NHS (national health service) as no private insurance will cover the procedure. The process of gettting approval, though, is no less tedious and troublesome as it sounds for you. It will take a minimum of 12-15 months to get approval and may even take more than two years. It is tremendously frustrating. Even the medical professionals do not seem to understand that each day of delay matters when it means an additional day of pain. There is no choice, though, but to continue with life as best as you are able.<br /><br />Good luck.Anonymousnoreply@blogger.com